I have often felt that the stigma associated with bipolar illness is as big if not bigger (twice as big) as dealing with the illness itself. Every time there is a school shooting or a gun incident or a drug cartel development that involves an unstable person with mood issues, all parties with a behavioral health diagnosis suffer. The emphasis in society rarely is on developing preventive care for people with behavioral care diagnoses. Admitting such people to jails appears to be more of the status quo in the years following the closing of many State-run facilities. Undoubtedly, there has been a cost savings with the closing of hospitals across the United States but the flip side of this is that many people with behavioral health diagnoses end up in jail or homeless on the streets. Too often people may encounter the fact that there are no beds available when they go to be evaluated for admission to a behavioral health facility.
While I am not an expert in addiction issues at all, I feel that the opioid epidemic of the last several years is evidence of the fact that our behavioral health and addiction facilities are lacking in funding and in expertise while the world is lacking in understanding and compassion. The stigma associated with having an addiction or an addiction-based personality is a huge factor I believe in addressing this crisis. What is evident now more than ever is that addiction issues (and behavioral health issues) do not discriminate based on race or socioeconomic stature or religion or any other factors.
I have encountered stigma in the workplace, during the job interview process, in the neighborhood, in the world of health insurance, and just about in every facet of society. I have often heard of the comparison of behavioral health issues to diabetes. Would you think less of a person who takes insulin daily? Probably not. But would you think less of a person taking psychotropic drugs? Today, the typical answer to this question is probably so. Would you think less of a person who has exited the opioid epidemic and is actively addressing addiction tendencies? Hopefully the answer is we are learning to be proud of that person for reaching out and for getting help with a problem that is real across all sectors of American society.
The stigma issue at least in behavioral health tends to feed on itself. Because the stigma is high with regard to behavioral health diagnoses, I find it hard to share my diagnosis and my daily troubles with others. This need for secrecy or keeping the diagnosis story a secret in turn creates undertones of distrust or lack of trust and/or continuing questions. If I share my story with person x, will he or she keep that story confidential or not? What will be the fallout if my diagnosis is shared in the neighborhood or in the workplace or at my daughter’s school? These are serious questions regarding a very serious topic.
Mostly I have found that people outside my family circle are not at all aware of or supportive of mental illness concerns. The education that they receive typically comes through the news where the typical story involves a young teen or twenty-something who is disturbed at home, who may have sought psychiatric care or may not have, and who decides to engage in some sort of heinous premeditated shooting rampage. Unfortunately these stories of misunderstood teens and young people on a death rampage have become more of a norm in our society in the last ten to fifteen years than anyone would care to admit.
To me there are very clear steps that society should be taking to counter-act these potentially preventable heinous acts of violence.
1) Background checks for the purchase of guns and other weapons such that people with a history of mental illness may not purchase or own a gun or weapon under any circumstances. This includes background checks for all types of gun sales and gun ownership.
2) Some form of alert that can be provided by a mental health worker if a particular patient is in distress and appears to be a danger to himself and others, particularly to others. Right now, most privacy laws do not allow for that disclosure given doctor-patient confidentiality laws.
3) A clearer understanding for Crisis Intervention workers and teams including training in mental health issues. First Responders need to be armed with a greater understanding of when a crisis event is a dangerous event for others versus when a crisis event creates danger for only the patient and the patient’s life.
4) Funding and payment to Crisis Intervention workers for this training.
5) Funding and training to mental health workers to help distinguish patients who pose a threat to society as compared to patients who are experiencing a threat to themselves.
6) Additional early intervention work for teens in inner city environments with behavioral health concerns to get them off the streets and out of association with gangs and gang behaviors with the end game being to treat these kids for psychiatric issues before they get a criminal record and are incarcerated.
This requires that we look at the cost-benefit of treating at-risk teens for behavioral health concerns versus the current pattern of enabling criminal activity among teens by not providing the behavioral health care that they need until after they are in jails. In my opinion, society needs to accept the cost of working with at-risk teens on behavioral health issues so as to avoid the huge cost of incarcerating a large and growing sub-population of mentally disturbed people with a history of criminal behavior in our inner cities and towns.
If we are going to progress past the stigma of mental illness diagnoses, it may be necessary to give up some of our freedoms. If we are going to differentiate between a mental health event that endangers the patient versus a mental health event that endangers community or society, we people with behavioral health diagnoses need to be willing to give up some of our freedom. To me giving up freedom is agreeing to sign off on background checks for guns and other weapons as well as amending doctor-patient confidentiality laws if there is clear evidence or behavioral propensity of a danger involving the greater community. Clearly if we are going to expect care-givers and first-responders to bear the responsibility of determining if the event scope is patient-only versus community-reaching, we will need to provide topnotch education to both mental healthcare providers and First Responders. Both groups need to be well-versed in signs that distinguish when the patient is a threat to self but more importantly a threat to others. Both care-givers and first-responders need to be armed with an understanding of how these two scenarios differ and how they are the same with the end goal being the care for human life – the life of a disturbed teen but also the lives of those in community with this teen.
2 thoughts on “My Sojourn through Bipolar Illness – Stigma”
My concern would be that giving up freedom would end up reinforcing stigma.
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I can see how you might arrive at that conclusion. As someone who has experienced severe bipolar illness, I believe I personally should be restricted from owning a gun of any kind at any time. I can see how you might believe that giving up that freedom might lead to more stigma. What I feel in my heart of hearts is that we need to differentiate those who are a threat to their community versus those who are feeling likely to self-harm. Then we need to provide treatment to both groups but in a way that acknowledges their rights as well as their safety and the collective safety of their communities..