My Sojourn through Bipolar Illness – Family Then and Now (part two)

After the postpartum period began to become more under control, my relationship with my own mother blossomed.  She was able to step in and care for my daughter when I was overwhelmed by postpartum depression.  In addition to her developing as a grandmother to my child, I felt that she over the years began to learn to let go of feeling responsible for my illness or for controlling my illness and was more able to be just “a support.”  She became someone to talk with about feelings and issues when needed.  At other times she was a person to bring the family together in a weekly meal at her house.

I attribute NAMI (the National Alliance on Mental Illness) to a lot of my mother’s development and understanding of behavioral health issues.  NAMI programs helped her just to be there for me as a Mom and a friend.  NAMI taught my mother I believe the importance of just being there – not necessarily doing anything but just “being there.” Granted there were times in the past that I felt that she wanted to be intimately involved in my care and in my therapy in a way that I did not want.  When she gave up this control and decided to focus on being a support, our relationship blossomed as did the growing relationship between her and my daughter. 

Over the sixteen years of my daughter’s life, my mother has become a great presence in our family interactions.  We get together most times weekly or more than weekly for a meal or a soccer game or both. Today in covid-19 times that has migrated to a daily phone call and some outside social time with masks and social distancing. 

My relationship with my husband James has also matured as my health has progressed.  We continue to have our favorite arguments, but in general we are on the same page of putting our daughter first including school time, school work, hobbies like Cross Country, Track and Chorus and her spiritual development.

My husband has continued to be one of my most staunch supporters but not in a way that is easily described.  More than giving me a safe harbor in which to rest my myriad of thoughts and perceptions, he has challenged me to find my rock bottom and work my way out of it.   He is no way gets involved in my illness but rather gently or sometimes not so gently reminds me that my illness is mine to deal with.   This expectation that I will deal with my illness is both verbal and non-verbal.  In addition to working though my illness, my husband has largely been accepting of the fact that a high paying job is likely not going to be something that I can stick with and maintain.   It is with his support that I have been writing this text off and on for the last several years.

In addition to my Mom and my husband in recent years and my sister in years’ past, my in-laws have been extremely supportive of me and my efforts toward financial security.  From the beginning of my relationship with my husband, they have provided fiscal support that has allowed me to work from home on a variety of health and health measurement concepts. Through this work, I have traveled for presentations in Zurich, Switzerland as well as in Brighton, England.  Work also has been presented at CJR School of Public Health.  Without the fiscal support of my in-laws, none of this work would have been possible.  

My family support over the years has grown in parallel to the understanding of the illness among the public and among medical providers.  My family always has provided me support over the years even through some of the most heart-wrenching episodes of my life including fits of blaming them for my troubles. 

My Sojourn through Bipolar Illness – Becoming a Mom

Becoming a Mom has been the greatest gift God has ever given to me.

I got married at 38, got pregnant at 39 and had my child at 40.  I often talk and think about how as a person with a behavioral health diagnosis I have done everything “late.”  I have to talk with myself about how life events like graduating from Ivy College or graduating from Business School or obtaining my professional project management certification may have occurred on God’s timeline rather than on my own.

Perhaps I am not late in achieving these life events any more than I am early in my perceptions or thoughts about time and matter and anti-matter.  Perhaps all of these thoughts and events and timelines are under control with the ultimate project manager – God himself.

Still, I have a hard-time accepting that these successes are on God’s timeline rather than my own.  I want to be able to say “I’m normal” and therefore “my successes have occurred in the way I have prepared for, planned and executed.”  In reality these successes are contingent upon allowing myself some “grace” and the opportunity to pursue my accomplishments in an elongated timeframe.  There are many goals that I have currently that I continue to pursue – the message to myself along these pursuits is that God is in control of these developments, even though I would prefer to be in control myself.  I would prefer to be in control just as that ten-year-old child within does so as perhaps despite myself to take full blame when things don’t go according to plan.  If my child within is six and/or if God is in control, I am no longer in control of the outcomes of my life.  If I give my life over truly to God, then every outcome including the potential for child abuse at age six is part of his plan for me and I need not accept any particular outcome as “my doing” or “my fault.”  Perhaps my role in God’s eyes is to tell my story of abuse so that others will not have to endure such happenings or at a minimum can feel some solidarity surrounding those events.

So it was with having my daughter — the biggest accomplishment of my life.  For years, I heard that Lithium was contra-positive toward being pregnant and carrying a child.  For years in my twenties and my thirties, I asked to change my meds so that I might be ready once I got married to carry a child.  When I met my husband, we talked at length about the fact that bipolar illness has a huge genetic component and that there would be some risk of passing the illness along to my child.  I considered this strongly and even looked into the idea of surrogate eggs and surrogate Moms.  In addition, there was a study occurring at a local university hospital which posited that risks to the fetus for heart impacts associated with lithium use by the mom were grossly overstated. My husband was not keen on the surrogate or adoption alternatives, so about 7 months after we were married, we started to try through traditional methods to get pregnant.  I was 39 at the time.  I believe that prior to this time, I may not have been ready to be a Mom, at the same time I do not really advise people to wait too long to have kids.  My husband and I were very blessed to become pregnant within two months of trying.  For most people at the age of 39 in vitro and other pregnancy/fertilization tactics would have been needed.

Even amidst the throes of postpartum depression and related problems, having my daughter in my life and experiencing her as part of my family with my husband continues to be the greatest blessing in my life.  Even now in the midst of the teen years and our occasional head-butting, my daughter continues without a doubt to be the love of my life tying with my husband.