There was a time in my life where I lived in the same city as my sister. For a period of about 7 years my sister invited me into her home and volunteered to help administer meds when I was in the midst of what I call a mini-break. I feel like this treatment time in her home was instrumental in the prognosis of my illness. I was able to hang out with family even when I was severely ill.
In more recent years, I have come to understand that in Europe home treatments for mental illness are more popular than here in the States. I don’t thoroughly know why that is. But I do know it takes a village.
The progression of my illness since about 2008 using clozapine has basically stopped the occurrence of these mini-breaks but there may be a time when I bump the meds up for a particularly rough day. This is generally in step with my doctor.
The relative stability on clozapine beginning in 2008, however, was preceded by a time of hospitalizations about twice a year after my daughter was born. This was about 2004 to 2008. Prior I had had a period of hospitalizations from 1986 to 1988.
Do you think those who have severe behavioral health concerns/break-through episodes should be treated in the hospital or by a family member who is educated about treatment protocols, medications and the general course of the illness? What do you think about hospitalization versus family care? What are the benefits of each? What are the drawbacks?
This was going to be the cover of my book: My Sojourn through Bipolar Illness – Safety, Society, Stigma and Stability. Thought I’d share it since I am now blogging instead of seeking a publisher. For me the painting captures the feeling of being stigmatized by mental illness as well as the simultaneous goal of keeping your eyes on the prize (the target) despite set-backs big and small.
I am interested in writing about my experiences managing bipolar illness which was diagnosed in 1985 while a Senior at Ivy League College (name not listed). This is almost 35 years ago and also accounts for almost two thirds of my life. I believe that stigma is the primary issue I have had to deal with when managing through this bipolar illness. Similar stigma issues may exist for other mental illness diagnoses. For me the stigma has been at least 50% of the battle. If this story sounds like something you would be interested in hearing more about, please let me know. I am at the juncture now of trying to determine whether to share intimate details about my health and my life in order to get my story out there and to connect with others through story-telling who may share a bipolar diagnosis or know someone who does.
I believe that overcoming stigma is more than half the battle with any mental illness. I believe by telling my story and by connecting to others with similar stories, we will break down the barriers to understanding mental illness and reduce stigma in the process.